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Clinical Trials = Core Health Care Business Webinar – 10 September 2020

Let’s realise the opportunities!

Have you ever wondered what makes a research study a ‘clinical trial’ or why these trials are needed in rural settings?

The fourth event in our virtual 2020 WHRN webinar series will focus on a broad range of aspects relating to clinical trials.

Join this FREE virtual event to learn more about the different types of clinical trials, how trials are run and how access could be improved for people living outside large metropolitan areas.

The webinar will be facilitated by Dr Rob Zielinski, Oncologist and Clinical Trials Director for the Central West Clinical Trials Unit.

Presenters include A/Prof Georgina Luscombe who will cover what a clinical trial is; Anita van der Meer and Steve Millard will explain why we need them; Jan Savage will cover how communities can support them; Dr Melanie Berry and Carlos Castrillon will give examples of different types of clinical trials and Rebecca Mister will provide a practical insight into the governance and ethics relevant to clinical trials. The webinar will also cover how to facilitate access for people in regional and rural areas.

We encourage community members and all health and education professionals to spend 90 minutes listening to our range of expert speakers discussing the value of growing clinical trials in rural NSW.

Thank you to everyone who joined this webinar. We had over 100 attendees and great feedback was provided. The video recording from this session can be viewed below.

Program

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Speaker List

Rob Zielinski, Director, Central West Clinical Trials Unit, Western NSW Local Health District

A/Prof Georgina Luscombe is a research academic at The University of Sydney School of Rural Health. She has a broad range of expertise in medical and allied health research, particularly in the design, implementation and analysis of research with community organisations and clinicians. A/Prof Luscombe strives to achieve fairer participation of Aboriginal people in both healthcare and research and believes that privileging of Indigenous ways of knowing will lead to improvements in health for Aboriginal people. Her main areas of expertise are in research design and statistics, and her research interests include rural health, healthcare access and digital health.

Jan Savage is a foundation member of Cancer Care Western NSW and the Funding/ Marketing Coordinator  responsible for funding the build of Western Care lodge for Cancer Patients and the seed funding for Clinical Cancer Trials at OHS” Jan has a background in Business , tutoring and Health. She has received state and national awards for philanthropy.”

Anita van der Meer currently leads clinicaltrialsNSW at NSW Health where she is responsible for developing strategies to enable clinical trial capacity, capability and collaboration across New South Wales.  Her expertise in translation and development of pharmaceutical and medical technologies is supported by more than 20 years of clinical trial experience in Australian start-ups and global pharma and med-tech companies. 

Anita Van Der Meer has previously managed pre-clinical and clinical trials for Medtronic, Schering-Plough, MSD, SpineThera, Pharmaxis, Applied Physiology and Ventracor.  Her areas of expertise include medical devices, cardiac rhythm and cardiovascular technologies and First-in-Human clinical trials.  She has previously been co-chair of the Medical Technology Association of Australia Clinical Investigations Forum and member of the Research and Development Task Force and AusBiotech Clinical Trials Advisory Group.

Mr Steve Millard, Manager, Central West Clinical Trials Unit, Orange Health Service originally training as a nurse in the UK. Steve moved to Australia 16 years ago and worked as a chemotherapy nurse at Sutherland hospital in Sydney before transitioning to clinical trials at St George hospital in Sydney. In 2015 he moved to Orange to manage the clinical trial unit. Today he manages a successful, self funding trials unit with a small team of research nurses and pharmacists.

Rebecca Mister, Clinical Trials Program Manager – Cardiovascular and Diabetes. Rebecca has over 20 years of experience in design and management of Clinical Trials both in the UK and in Australia. Rebecca leads the Cardiometabolic Trials team at NHMRC Clinical Trials Centre, University of Sydney and is responsible for the development of new trials as well as management of existing trials within the portfolio. She is also responsible for oversight of the Ethics Co-ordinator team and in-house support for ethics questions. Prior to this Rebecca was Head of Site Management, providing support to CTC staff for SOPs, education and training, monitoring, standardising ethics applications and many other things. Rebecca was also a key member of the internal Matrix committee responsible for reviewing of internal protocols prior to ethics submission.  Rebecca also teaches 2 Units of the Masters of Clinical Trials Research at the University of Sydney.

Rebecca has been a member of the University of Sydney HREC since 2014, and also contributes to SLHD HREC Clinical Trials Committee, she and has a passion for ethical issues and questions.

Dr Melanie Berry, Orange Health Service, Western NSW Local Health District

Carlos Mesa Castrillon is a PhD student of Medicine and Health at the University of Sydney. He is a physiotherapist from Colombia and has a master degree in physiotherapy from Brazil. He currently has a scholarship from Colombian government to complete his studies in eHealth and musculoskeletal pain in rural populations.

Lesa Towers is a senior manager and member of the Western NSW Local Health District’s Aboriginal Health Leadership Team. Lesa has a wide-range of expertise in Aboriginal Health, including leading the development and implementation of a number of Aboriginal health initiatives inclusive of Aboriginal Research. Lesa recently worked as part of the investigator team for the National Aboriginal Career Pathways Project. Lesa also received the award for Best Presentation at the 2019 WHRN Research Symposium.

The WHRN would like to thank our sponsor the NSW Government for this webinar which is part of the WHRN 2020 Research Symposium series.

People living in Western NSW have been able to be involved in clinical trials since 2014, with the
establishment of the Central West Cancer Clinical Trials Unit in Orange.
Now in its seventh year of operation and led by Director, Dr Rob Zielinski, the Unit currently has
over 25 active trials involving more than 150 patients enrolled on a trial or in the follow-up phase.

“Access to clinical trials is not a nice add on but it is considered part of the standard of care in all health conditions”

Photo by mick orlick on Unsplash

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Plenary Session:

Driving Equity in Research: Supporting Regional, Rural, Remote and Indigenous Communities

We will be joined by Dr Natasha Friend and Dr Bronwyn Wyatt from the National Health and Medical Research Council (NHMRC) Equity Team. They will provide an overview of NHMRC’s equity policy activities, with a particular focus on gender, regional, remote and rural (RRR) equity and indigenous equity activities

This presentation will be followed by a session exploring the barriers faced by regional, rural and remote researchers with discussions on advancing equity across the research sector to complete the session.

Dr Natasha Friend is the Assistant Director Equity in the Research Quality and Advice Branch at the National Health and Medical Research Council (NHMRC). Natasha helps lead NHMRC equity policy across priority areas including gender and rural, regional and remote equity. Natasha completed her PhD in the genetics of multiple myeloma at the South Australian Health and Medical Research Institute. She has worked at both NHMRC and the Australian Research Council in several roles including grants administration, evaluation and policy.

Dr Bronwyn Wyatt is a Senior Policy Officer in the Research Quality and Advice Branch at the National Health and Medical Research Council (NHMRC), supporting initiatives that promote equity in and through health and medical research. Bronwyn has a PhD in Biological Anthropology from the Australian National University and previously worked as a Data Analyst at the Australian Institute of Health and Welfare across a range of national health data programs.

 

Workshop:

Digital Health, AI and Equity in Rural Settings

Presenters: Abe Warwick, Ged Hawthorn
  1. Visionflex: An interactive experience with a live connection from the workshop room back to the Visionflex demonstration suite in Sydney. You will watch a real consultation happen across several hundred kilometres, with live diagnostics coming back in real time. A mobile kit will be in situ so you can pick up and handle the devices themselves, including the examination camera, digital stethoscope and camera glasses.
  2. Pharma8: Improving Medication Safety and Buying Back Time for Rural Clinicians
    As a pharmacist inside NSW Health, Ged designed implemented and researched a virtual clinical pharmacy service that scaled to over 30 health services across Western NSW, bringing clinical pharmacist input to rural sites that had never had it before. That’s what equity in rural health actually looks like in practice: not a scaled-down version of a city service, but genuinely new access where none existed. However the research behind it told a harder truth: even at scale, the service was only reaching 1/3 of patients on discharge. In a fiscally constrained environment, more staff wasn’t the answer, smart technology was. That insight led Ged to found PharmaM8.
    Reconciling medications on discharge and preparing the required paperwork can eat 20–30 minutes of a clinician’s day, one of the most preventable sources of patient harm made worse by exactly the kind of time pressure rural and remote clinicians face every shift. In this session, watch unformatted, jargon-filled medication information be transformed in minutes into a verified, patient-friendly medication list and interim medication chart. Attendees will see how digital health and AI, applied carefully and with clinical scrutiny, can close the coverage gap by giving clinicians time back to spend more time in direct patient care.
Abe leads Customer Success at Visionflex, an Australian health technology company whose virtual care platform is used across aged care, Aboriginal Community Controlled Health Organisations, remote and rural health services, mine sites and Antarctic research stations. He works with health services across Australia and New Zealand to turn telehealth equipment into models of care that actually get used, with a particular focus on remote and rural settings where workforce shortages make hub and spoke delivery the only realistic option. Abe is interested in the practical side of digital health equity, including what happens when technology is funded and installed without a model of care to support it.
Ged Hawthorn is a pharmacist and healthtech founder with a growing interest in rural health research. Ged helped design and evaluate a virtual clinical pharmacy service and then led the expansion to over 30 health services across rural and remote Western NSW. This work has contributed to six peer-reviewed publications, including a stepped-wedge randomised controlled trial (BMC Health Services Research) and a recent economic evaluation modelling the service’s return on investment (Journal of Pharmacy Practice and Research, 2026). 
Ged‘s career has been built in rural and remote pharmacy, from sole pharmacist in charge of a remote-area pharmacy in Cobar, NSW, to Senior Regional Pharmacist with WA Country Health Service in Broome, where he worked in the region’s telechemotherapy unit, a unique model improving access to chemotherapy, while also covering medication supply across the entire Kimberley region, an area of over 420,000 square kilometres. He remains a practising Senior Clinical Pharmacist and Pharmacy Educator at Western NSW Local Health District, and is a guest lecturer at the University of Sydney and Charles Sturt University.
Across his public health career, Ged has built a strong record of innovation, leading new models of care and designing and implementing digital tools within NSW Health. This has been recognised with numerous awards at both local and state levels. He is now applying that same drive to innovate from outside the constraints of a slow-moving public system, Founding Hawthorn Healthtech and building PharmaM8, a digital health tool that cuts the administrative work and improves medication safety on transfer of care, a finalist in the 2025 Innovate with nbn Awards. He is a Board Certified Geriatric Pharmacist (American College of Clinical Pharmacy), a Fellow of Advanced Pharmacy Australia in Critical Care and Education (FANZCAP), and completed Cohort 3 of the Australian Clinical Entrepreneur Program in 2025.

Workshop:

Oral health is everyone’s business: Collaborative Oral Health Care in Rural Communities

  1. From Dental Chair to Primary Care: Integrating Oral and Systemic Health Associate Professor Shalinie King
    Rural Placement Programme Academic Lead, The University of Sydney Dental School, and Oral Health Programme Lead, Westmead Applied Research Centre

  2. Oral health advice in non-dental settings
    Dr Lauren Church
    Lecturer, The University of Sydney Dental School 

  3. Digital platforms to improve access to paediatric care (Vspec project)
    Associate Professor Mel Nott
    Principal Research Fellow | Three Rivers Department of Rural Health Charles Sturt University

  4. Caring and call to action for young smiles: International Recommendations for Children’s Oral Health
    Associate Professor Marco Benini Paschoal 
    Research lead in the Centre for Rural Dentistry and Oral Health at Charles Sturt University
Presenters:

Shalinie King is an Associate Professor with the University of Sydney Dental School where she is the academic lead for Rural Placements, and program lead for Oral Health Research at the Westmead Applied Research Centre (WARC). Shalinie is a practising clinician with experience working in both the public and private sectors, she has extensive teaching experience and recently completed a 12-month term as Director of Academic Education at the Sydney Dental School.

Her research interests include understanding the associations between oral health and overall health, developing and evaluating strategies to improve community access to basic oral health information focusing on the use of digital technologies to support oral health promotion. Her work aims to design and implement new models of care that integrate oral and overall health care and, that improve community awareness and knowledge about the importance of good oral health in contributing to better overall health outcomes.

Dr Lauren Church is a Lecturer with the University of Sydney Dental School, where she is third-year unit of study coordinator for the Bachelor of Oral Health. Lauren is a registered clinician with public and private sector experience and teaches BOH students in the acute care setting at Sydney Dental Hospital, where she fosters interprofessional learning between BOH and DMD students.

She recently completed her PhD at the University of Sydney. Her research examines the connection between oral health and cardiovascular disease, oral health education in hospital settings, and protocols for integrating digital oral health interventions into cardiac rehabilitation. Her work aims to shape compassionate, patient-centred clinicians and to advance oral health within broader public health strategies. Lauren is Deputy Chair of the Oral Health Association of Australia (NSW Branch) and NSW Oral Health Representative for the Public Health Association of Australia.

Melissa is a regionally based occupational therapist working with rural communities, health service users, families, health professionals and service providers. She has a strong background in collaborative and partnership-based research that focuses on translating evidence into healthcare practice, supporting health professionals to build sustainable research networks, co-design and co-production with community stakeholders, and evidencing impacts of healthcare initiatives.

AProf Marco Paschoal is an Associate Professor in Clinical Dentistry at Charles Sturt University, (Orange Campus) and a specialist paediatric dentist with a strong commitment to advancing child oral health through research, education, and clinical practice. His research focuses on developmental dental defects, particularly molar hypomineralisation, alongside cariology, and evidence-based approaches to paediatric dental care. He has published extensively in international peer-reviewed journals and is passionate about translating research findings into meaningful improvements in clinical care and health outcomes for children and adolescents. Beyond his academic role, he has actively contributed to the advancement of oral health research through professional leadership and scholarly service. He serves as the IADR Western NSW Councillor and is an active member of the Australian and New Zealand Society of Paediatric Dentistry (ANZSPD) and the International Association of Paediatric Dentistry (IAPD). He also contributes to scientific publishing as a Board Member of Scientific Reports, an Editorial Board Member of BMC Oral Health, and a Guest Editor for BMC Pediatrics, supporting the dissemination of high-quality research and evidence-based practice worldwide.

Workshop:

Doing research that matters: How to plan program evaluation in rural health services

This workshop aims to provide an overview of key issues and considerations in planning and undertaking evaluation of health and wellbeing programs. Participants will be introduced to a simple step-by-step approach that can be applied successfully in many health program contexts. The workshop will draw on a case study of a Marathon Health program that has recently completed this evaluation process.

Read about the process: https://onlinelibrary.wiley.com/doi/epdf/10.1111/ajr.70068
Presenter: Matt Thomas

Matt Thomas is a clinical psychologist working in the role of Principal Practice Lead with Marathon Health, based in Bathurst, NSW. His role includes leading research activities focussed on evaluation of innovative rural health services and rural health workforce development.  He is an Adjunct Associate Professor in the School of Psychology at Charles Sturt University and in the Discipline of Psychiatry and Mental Health at the University of NSW.

Workshop:

Innovating together: A practical workshop on co-designing for rural health research

This workshop aims to equip participants with knowledge and practical skills for engaging health consumers in research co-design and implementation. Facilitated by an experienced team of health consumers and researchers, this will be a engaging and dynamic workshop that unpacks the co-design process.
 
Facilitators: Carrie Hayter, Health Consumers NSW and Melissa Nott, Three Rivers Department of Rural Health

Carrie Hayter works to amplify the human rights and living experience of people who use aged care, disability and health care services and has over 30 years’ experience working alongside people who use aged care, disability and health services to improve and change service systems. Carrie has a Bachelor of Social Work (Honours) from the University of NSW, a Masters of Economics (Honours) from the University of Sydney, is a 2017 graduate of the Sydney Leadership Program, and a Distinguished Member of the Australian Association of Gerontology.  Carrie has living experience of Coronary Artery Disease and is a consumer representative on the St Vincents Private Hospital Consumer Advisory Committee, the St Vincents Private Hospital Clinical Governance Committee  and the Westmead Applied Research Centre in Sydney.  She is a Consumer Adviser on the Victor Chang Cardiac Research Institute, Consumer and Community Involvement Working group that is working to improve consumer and community involvement in research across the Institute. Between 2021 and 2024, she worked for Health Consumers NSW as the Consumer Engagement Manager, Health and Medical Research, working to build the capability and capacity of consumers and researchers to involve consumers and the community in health and medical research. Carrie’s vision is for all people and communities to live their best lives supported by service systems underpinned by human rights and evidence-based practice.   Find out more at https://www.carriehayter.com/.

Melissa is a regionally based occupational therapist working with rural communities, health service users, families, health professionals and service providers. She has a strong background in collaborative and partnership-based research that focuses on translating evidence into healthcare practice, supporting health professionals to build sustainable research networks, co-design and co-production with community stakeholders, and evidencing impacts of healthcare initiatives.

Workshop:

Strengthening the Rural Health Workforce Through Research

Research often begins with a simple question: Why does this happen? Could we do this differently?

Designed for clinicians with emerging curiosity about research, this interactive workshop explores how everyday challenges, observations, and quality improvement activities can become meaningful research opportunities. Through a researcher panel and practical group activities, participants will learn how to identify workplace problems, develop research questions, and take their first steps towards research that can improve rural health services and patient outcomes.

Presenters: Luke Marks and Sharon Laver

Luke Marks is a Research Coordinator, nurse leader, and PhD candidate with more than 24 years’ experience across rural and regional healthcare. His clinical background spans emergency, paediatric, community, renal, perioperative, intensive care, and nursing leadership roles. Luke currently leads initiatives focused on nursing and midwifery workforce development, leadership, research, advanced practice, and professional standards. Passionate about building research capacity within the healthcare workforce, Luke is the founder of the Nursing and Midwifery Research Excellence Centre (NaMREC), an Adjunct Senior Lecturer with Charles Sturt University, and is currently undertaking a PhD exploring leadership practice among Advanced Practice Nurses in regional New South Wales. A Wiradjuri man living and working on Wiradjuri Country, Luke is committed to supporting clinicians to translate curiosity, quality improvement activities, and everyday practice challenges into meaningful research that strengthens rural health services and improves patient outcomes.

Sharon is a Registered Nurse and academic at Charles Sturt University (CSU) with extensive experience in community-based nursing, health service management, and organisational development. Her experience extends from major metropolitan hospitals to rural and small remote Australian health services and has included major state level project work. Her research interests include transition to professional practice, rural nursing workforce preparation, development, retention, and capacity building. Sharon has been working with the Western NSW LHD Nursing and Midwifery Research Excellence Centre (NaMREC) to build research capacity and capability through a number of projects. If accepted, this workshop will be co-facilitated by NaMREC project participants and CSU partners.

Proudly sponsored by:

Workshop:

Things We Have Learnt the Hard Way: An Introduction to Mental Health Research for New Starters

Mental health research is full of unexpected challenges. In this interactive workshop, we’ll discuss some of the common pitfalls and practical solutions we’ve learned through experience. it focuses on the practical things that don’t make it into research methods textbooks. Join us to explore literacy-friendly participant information sheets, distress and wellbeing protocols, reducing research burden on participants and clinicians, recruiting realistic samples in rural communities, and choosing the right outcome measures. Bring your questions and examples from your own projects. Experienced researchers are encouraged to come along and share their learnings too.
Presenters: Professor Julaine Allan, Dr Nicole Snowdon, Dr Kate Freire
Proudly Sponsored by:

Plenary Session:

Aboriginal and Torres Strait Islander leadership in research

We will hear from Michael Newman, Deputy CEO of the Lowitja Institute, who will provide an overview of the Institute’s work. He will be followed by Judy Johnson, Chair of the Riverina Medical and Dental Aboriginal Corporation, and Simone Sherriff, Senior Research Fellow at the Poche Centre for Indigenous Health, University of Sydney, who will present a Lowitja Institute-funded research case study from Western NSW.

Nicole Turner, CEO of the Aboriginal Health & Medical Research Council of NSW, will then discuss the importance of strategic research and its role in improving Aboriginal health outcomes. The session will conclude with an opportunity for questions and discussion.

Following this, Jamie Newman will introduce the Orange Aboriginal Medical Service (OAMS). We will then hear from Fiona Clarke, Clinical Administration Lead at OAMS, who will present research from the Antecedents of Renal Disease in Aboriginal Children and Young People (ARDAC) Kidney Health Research Program. Anne-Marie Mepham, Chronic Care Coordinator at OAMS, will then present Screen Your Way, a cervical screening self-collection project.

The session will conclude with a further opportunity for Q&A and discussion.

Networking Session:

In this session, you’ll work your way through a fun set of questions to discover new contacts and connections. It’s a networking adventure, with maps of where you travelled – and maybe even some treasure – at the end.

You’ll need to bring your mobile phone along to this session to take part.

 

Dr Anthony Brown

Dr. Anthony Brown is the Research Manager at Health Consumers NSW (HCNSW). HCNSW is the peak consumer group in the state, it is an independent, membership-based charity that works to ensure that health consumers (patients, carers, and families) are involved in the decisions that impact on them. Growing up in the Central West has given Anthony a strong connection to regional communities and a firsthand understanding of the factors that influence health and wellbeing outside major cities. Anthony is both a strong advocate for consumer involvement in research and an experienced researcher. Before joining HCNSW he was the Manager of the Men’s Health Information and Resource Centre at the University of Western Sydney, where he completed a doctorate (PhD) looking at retired men’s community engagement.

Dr Andrew Goodman

Dr Andrew Goodman is an Aboriginal man from Iningai Country in Queensland. Prior to his PhD, Dr Goodman spent more than 13 years as an Indigenous Healthcare Worker in Queensland, focusing on cardiac and healthcare services with Aboriginal and Torres Strait Islander peoples. Currently, he is a Research Scientist with CSIROs digital health program, where he leads research initiatives focused on building the evidence base for digital health technologies that align with the priorities, interests, and needs of Aboriginal and Torres Strait Islander peoples. Central to his approach is the principle of “Relationships before Partnerships,” which emphasises trust, reciprocity, and accountability as the foundation for meaningful collaboration with Aboriginal and Torres Strait Islander peoples and organisations.